Official Sections CTRMS ISVCA IPITA IPTA ISODP IRTA IXA SPLIT TID

Patient, Family and Engaged Partners (PFEP)

Mission Statement

Bridging the gap between patients, families, doctors and the community to help improve the outcome of pediatric liver transplantation

Participants

Pediatric Liver Transplantation Patients and Families from SPLIT Centers

On behalf of the SPLIT PFEP group, thank you so much for your participation and interest. If you can please take the time to fill out the information, we would appreciate it.

PFEP Member Online Survey (link to come)

Areas of Interest

  • Education
  • Research
  • Quality Improvement and Clinical Care
  • Mentorship
  • Advocacy

Communication of Our Group

  • Monthly conference calls
  • Closed Facebook group – active discussion throughout the month
  • Twitter
  • Surveys
  • SPLIT annual conference for PFEP leadership team
  • Email alerts of upcoming meetings, surveys, administration activities

Resources

Transplant Games

United States
Transplant Games of America
Canada
The Canadian Transplant Games
World Transplant Games
World Transplant Games

Transplant Camps

United States
Camps (liver transplant)
Camp Kostopulos, Utah
Camp Michitanki, Michigan
Camp Okawehna (Kidney transplant/dialysis)
Children’s Healthcare of Atlanta
UNOS Transplant Living
Canada
Camp Kivita, Ontario
(all solid organ transplant & living with organ failure)
Camp Oki, Ontario (living with heart disease)

Social Media Connection

Facebook SPLIT PFEP Public Group
SPLIT PFEP Twitter Account: @SPfep

Organ and Tissue Donation &
Registration Information

United States
U.S. Department of Health & Human Services
Canada
Alberta, Northwest Territories and Nunavut
British Columbia
Ontario
Manitoba
New Brunswick
Newfoundland and Labrador
Nova Scotia
Prince Edward Island
Quebec
Saskatchewan
Yukon